neutropenic Alex's online moblog

by neutropenicalex

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Hello friends. This is My "moblog". I will try to update it everyday, from my lovely hospital bed.
keep updated :) and feel free to e-mail me at aj_saville@nerdshack.com. I will email you back
xxxxx

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Skin on my feet

(viewed 1108 times)
Hello!
Im watchin the england game in hospital, am feeling pretty dam good
thankyou.
Im on loads of painkilllers, but they work dam well, so im in no pain.
Iv just been pulling the skin off the soles of my feet, quite amazing
how much skin you can have on the bottom of your feet. The GVH skin is
coming off, its basically no attached anymore, so i thought id pull it
off, some actually comes of in big big whole pieces, like socks, made of
my own soles, its cool.I could make a lamp shade out of the skin, with very little sewing
together!
HeheYummy.The start of another piece.
I should enter the turner prize. If i had planned it better i would
have.
Alex saville
15th Nov 2006, 21:00   comments (2)

Skin on my feet

(viewed 1381 times)
Hello!
Im watchin the england game in hospital, am feeling pretty dam good
thankyou.
Im on loads of painkilllers, but they work dam well, so im in no pain.
Iv just been pulling the skin off the soles of my feet, quite amazing
how much skin you can have on the bottom of your feet. The GVH skin is
coming off, its basically no attached anymore, so i thought id pull it
off, some actually comes of in big big whole pieces, like socks, made of
my own soles, its cool.I could make a lamp shade out of the skin, with very little sewing
together!
HeheYummy.The start of another piece.
I should enter the turner prize. If i had planned it better i would
have.
15th Nov 2006, 20:48   comments (7)

Low down

(viewed 1299 times)
Here is the lowdown
I have a very acute form of GVHD which is screwing around wiv my liver,
bower and skin so far.
The treatment needs to be quite a strong as this is quite a dangerous
situation.
Iv been put on strong steroids to suppress the attack, and different
antibodies to destroy the overactive T cells in my blood.
Because my bowel just wont absorb the nutrients it needs (coz its
inflamed and i have bad diarreha, iv have a hickman line back in, which
they r using for all my IV's and they r feeding me nutrients direct into
the blood stream. A mixure of everything i need.For the firsttime in about a week i managed to get a tiny bit of sleep,
(coz they have put 2 syringe drivers into my arm, which run morphine and
other painkillers 24hours)
While having the hickman line put in, i always offered the nurse a blue
satsuma, which i beleived was in my hand, before stopping myself. I like
satsumas u see.Tho i have also be using this opotunity to try the painkillers and
sedatives i having had before, like madazolan, which i think my have
helped me sleep last night.The next few days are quite critical, so understand i may not blog, but
will try.One good thing from this means that the topup i had has worked
exellently.... And then some!
It means i have a new working bone marrow, which produces very well on
its own. Just the T-cells need to be shut down quickly so my other cells
can handle the danmage they'l been causing.
Alex saville
10th Nov 2006, 09:51   comments (22)

Back to the old school

(viewed 1179 times)
Yes im modeling a pink canula nicely wrapped white bandaging. This is my
3rd one iv had here since friday.
The first one was put in by some dumbass AandE DR, it was huge!!! The
largest you can get! I asked him if it was the normal size. He said yes
(well that was just a blatent lie). It turns out the no he was using is
basically just used in AandE. If i was bleeding everywhere and they
needed to get blood into me quick then it would make sense. But not for
a temperature. The needle was about 2 inchs long!!!Well that one had to come out on saturday.The others have been ok... Damn AandE !!!!Liverpool have a match in the champions league tonight and apparently i
can see the stadium for my window! So when the floodlights r on tonight,
ill have a look.
31st Oct 2006, 10:56   comments (23)

Liverpool

(viewed 904 times)
Me and my family went to liverpool.
But once again i end up in hospital..... Like a genius
Had really bad headaches and fever.I went into hospital friday. Turns out i have a "staff" bacteria (it was
in my hickman line before it was taken out)But more to the point my liver is playing up and i have a really itchy
rash all over. And the doctors here think it GVHD (graft-versus-host
disease)
Which means the donor cells and affecting my liver and causing a
reaction on my skin.Steroid treatment again! Nice. Though if the symptons don't get any
worse then it can be a good thing, its a very good way of killing a last
tenny weeny bit of leukaemia that maybe there.Just hope it doesn't get much worse.
30th Oct 2006, 18:17   comments (6)

The tools of torture!!

(viewed 1404 times)
By the way david took the pics (if you look at past posts there is a
picture of him)
Hehe its so weird just chatting to llalindra and david while llalindra
is cutting a hole in your chest! Hehe because they use local anastetics
on the area you can feel pressure, like someones poking you, but no
pain.
Its a weird feeling..... Or should i say lack of feeling
My arm quivered once or twice which was pretty funny.I took the hickman line home! He he he duno what to do with it? Any
ideas?
19th Oct 2006, 17:52   comments (15)

Hickman less

(viewed 1411 times)
Alex saville
19th Oct 2006, 16:57   comments (5)

Hickman less

(viewed 1227 times)
19th Oct 2006, 16:57   comments (4)